Patient Recommended Physicians

Patient Recommended Physicians

Patient Recommended Physicians

Are you having a difficult time finding a physician to treat Ollier’s Disease or Maffucci Syndrome? We asked real people going through treatment across the USA to recommend doctors to you!

olliers disease doctors

Here is a list generated by state:

Delaware

Dr. Mihir Thacker, MD. Children’s Hospital, Wilmington, Delaware and specializes in bone and soft tissue tumors, as well as pediatric hip disorders, limb length/growth abnormalities, and skeletal dysplasias at the Nemours/Alfred I. duPont Hospital for Children.

Nemours/Alfred I. duPont Hospital for Children
1600 Rockland Road
Wilmington, DE 19803
Phone: 302-651-4000
Website

Illinois

Todd Simmons, MD
Orthopaedic Surgery Specialists, LTD
1550 North Northwest Highway
Suite 220
Park Ridge, IL 60068
Phone:847-824-3198
Website

Maryland

Dr. Bernard Cohen, M.D. is a Professor of Dermatology at Johns Hopkins Hospital who specializes in treating children with vascular malformations and hemangiomas. He is the Program Director of the eMedical Dermatology Review.

Johns Hopkins Hospital
200 N. Wolfe Street
Rubenstein Child Health Building
Baltimore, MD 21287
Phone: 410-847-3766

Dr. Carol Diane Morris, M.D., M.S. Johns Hopkins Hospital, Baltimore, Maryland and specializes in bone and soft tissue tumors, as well as pediatric and adult orthopaedic oncology, orthopaedic surgery, and pathologic fractures. She is an Associate Professor of Orthopaedic Surgery at Johns Hopkins School of Medicine and the Division Chief of Orthopaedic Oncology.

Johns Hopkins Hospital
601 N. Caroline St.
Baltimore, MD 21287
Phone: 443-997-2663

Dr. Sobreira, MD, PhD is a board-certified attending clinical geneticist who specializes in caring for children with cartilage and bone tumors and vascular anomalies. She is an Assistant Professor of Pediatrics at the McKusick-Nathans Institute of Genetic Medicine – Johns Hopkins University.
Johns Hopkins Hospital
733 North Broadway Suite 569.
Baltimore, MD 21205
Phone: 443 287 1104

Dr. Clifford Raabe Weiss, M.D. is an Associate Professor of Radiology and Radiological Science and Johns Hopkins Hospital who specializes in the diagnosis and treatment of vascular malformations and MRI-guided interventions, especially for the treatment of vascular malformations. He is the Medical Director of The Johns Hopkins Center for Bioengineering, Innovation and Design (CBID).

Johns Hopkins Hospital
1800 Orleans Street
Sheikh Zayed Tower
Baltimore, MD 21287
Phone: 410-614-1046

Pennsylvania

Dr. Alexandre Arkader, MD is a board-certified attending surgeon who specializes in treating children with bone tumors. He works with the Division of Orthopaedics and the Cancer Center. Children’s Hospital of Philadelphia (CHOP).

Children’s Hospital of Philadelphia
3401 Civic Center Blvd.
Philadelphia, PA 19104
Phone: 1-800-879-2467
Website

Florida

Paley Orthopedic & Spine Institute
901 45th St, Kimmel Building
West Palm Beach
Florida, 33407
Phone: 561-844-5255
Ask for Sarah Ziegler
Email: sziegler@paley institute.org
Website

 



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