Recent Posts

Patient Recommended Physicians

Patient Recommended Physicians

Patient Recommended Physicians Are you having a difficult time finding a physician to treat Ollier’s Disease or Maffucci Syndrome? We asked real people going through treatment across the USA to recommend doctors to you!

What is Maffucci Syndrome + How it Relates to Ollier’s Disease

What is Maffucci Syndrome + How it Relates to Ollier’s Disease

What is Maffucci Syndrome + How it Relates to Ollier’s Disease If you’re reading about Ollier’s Disease it won’t be long before you stumble upon Maffucci Syndrome. “Maffucci syndrome is an extremely rare disorder characterized by benign overgrowths of cartilage (enchondromas), skeletal deformities and cutaneous […]

Bryce’s Courageous Battle + Research Fundraiser

Bryce’s Courageous Battle + Research Fundraiser

Bryce’s Story via his Mom, Karen: Bryce is our courageous thirteen-year-old son that was diagnosed with Ollier’s disease (bone tumors) at the age of 6! This very RARE, INCURABLE disease affects 1 in 100,000 children worldwide. Bryce was only the second case of Ollier’s they had ever seen […]

What is Ollier’s Disease?

What is Ollier’s Disease?

What is Ollier’s Disease Ollier’s Disease is a rare disorder impacting approximately 1/100,000 persons across the globe. It is classified as a rare disorder. Ollier disease is a disorder characterized by multiple enchondromas, which are noncancerous (benign) growths of cartilage that develop within the bones that […]

Mission Statement

Mission Statement

  The American Ollier’s Disease Association (AODA) was formed in October of 2018 with the purpose of educating and raising awareness about Ollier’s Disease and Maffucci Syndrome both publicly and privately. To advocate and gather information and research for the community and professionals and to facilitate […]

Welcome!

Welcome!

Welcome to the American Ollier’s Disease Association. My name is Jeanette and I’m a proud Mom of 4 and also an Occupational Therapist. I said “someone should start a USA based organization” so many times that I realized I needed to be “someone.” My loving and […]